Support group is made for a rare disease - NBC Right Now/KNDO/KNDU Tri-Cities, Yakima, WA |

Support group is made for a rare disease

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PASCO, Wash.--A local family is looking to start a support group for families struggling to deal with a rare disease. 

The Lukawski family has a son battling eosinophilic esophagitis.  It's a condition that keeps children from being able to eat solid foods. 

Right now the family is working with a non-profit foundation called CURED that helps raise money for research. They want to start a local chapter and support group to help families in our area who are dealing with similar issues.

Bryan Lukawski is the father of Domanik who is fighting the disease. He mentioned that everyday things like having quality time around the dinner table aren't possible because of Domanik's condition.  He hopes that through raising awareness locally will unite people like them and show others they're not alone.

"We just want to create awareness through pediatricians and doctors and family so that way we could find people more like him," Lukawski.

So far the CURED campaign has raised more than two and a half million dollars for research.

The family is planning their first benefit for the group in September at the Clover Island Inn in Kennewick.

If you'd like to learn more information about the disease and foundation, go to curedfoundation.org.

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