Burbank Girl Battling Rare Auto-Immune Disease - NBC Right Now/KNDO/KNDU Tri-Cities, Yakima, WA |

Burbank Girl Battling Rare Auto-Immune Disease

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Burbank, Wash. - The Tri-Cities typically sees more than 300 days of sunshine a year, and the sunny skies draw many people to our region.

But for one local girl, the sunshine is  something she has to avoid at all costs to stay healthy.

9-year old Lacey Scott is battling a very rare and potentially fatal auto-immune disease called Juvenile Dermatomysitis. There is no cure for JDM, but it can go into remission.

The Scott family has to drive to Seattle twice a month for treatment. In the past year, the little girl has taken more than 7,000 pills. She's also had more than 55 shots and is undergoing chemo therapy treatments.

Lacey's family says the hardest part is keeping Lacey out of the sun which makes her very sick and can trigger other problems.

"She can't go outside and play with her friends like normal children do. Every morning she has to put sunscreen on, we put lotion on and then we spray her, and wear UV protected clothes when we go outside," said Lacey's mother, Shellie Scott.

Lacey and her mom also make and sell UV bracelets to help raise awareness about skin safety. The beads on the bracelet change colors to let you know you've been in the sun too long.

The family will be taking part in the indoor garage sale at the TRAC facility in Pasco this Saturday from 8 a.m. Until 2 p.m. to raise money for Lacey's treatment and travel expenses.

To learn more about Lacey, you can also visit www.4theloveoflaceyjdm.com

 

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