She just learned her yet to be born son will likely never walk. Prosser mom Alicia Jones is one of dozens of expecting moms in our region recently affected by a trend of birth defects.
PROSSER, WA – She just learned her yet to be born son will likely never walk. Prosser mom Alicia Jones is one of dozens of expecting moms in our region recently affected by a trend of birth defects.
Over the past three years nearly 30 women in central Washington have reported giving birth to babies with neural tube defects including Spina Bifida. One of the most recent cases is Noah Jones. His mother Alicia says a family of crusaders will support him.
"I'm feeling happy. I'm excited. I'm nervous. I'm scared," explained Jones. She says she is ready.
Noah will be born with Myelomeninggocele, which is the most severe form of Spina Bifida. Our spine acts like a zipper when it forms in the uterus to protect our neural tubes, but Noah's won't close all the way. As soon as he is born with a c-section he will be rushed to Seattle Children's Hospital for a major surgery.
"That's the first major challenge is for me being separated from my child while I'm at one hospital and he's at the next."
Doctors have told Jones that in Noah's case it is most likely that he will be paralyzed in the lower half of his body, never to walk and never to run with other kids. It is something she would not wish on anyone's child.
"If I knew about Spina Bifida maybe I could have prevented it, but in the end God has a plan and he knows what was going to happen before Noah was even created."
Jones created Noah's Crusade facebook page to connect with other moms going through similar challenges and to inform future moms. She says taking folic acid supplements before conception has shown to lower chances of the defect by 70%.
"I feel like I get to see him already."
Every week during tests Jones sees his tiny face in ultrasounds. It helps her. She thinks God gave her this child for a reason.
"Ultimately giving it to God. There's days that I just want to cry and I think about 'how am I going to do this?' My life is going to be changed forever. 'How am I going to do this?' and the only thing that I can do is just pray about it and give it all to him."
Jones is trying to raise awareness of Spina Bifida and other birth defects. She is also looking to speak with people who are going through the same process or have experience with the defect. If you would like to connect, you can find Noah's Crusade here: https://www.facebook.com/noahs.crusade