NBC Right Now continues to cover the story of Baby Noah's Crusade. Noah was born with Spina Bifida.
SEATTLE, WA - NBC Right Now continues to cover the story of Baby Noah's Crusade. Noah was born with Spina Bifida.
Noah was born last week at Seattle Children's Hospital and he is now the youngest case to join a cluster of neural tube birth defects in our region. Noah's mom, Alicia Jones of Prosser, says she's rereceivedne of the greatest mother's day gifts of all.
She tells NBC Right Now she's a crusader and she just won the first battle, "the day that we go home and we leave here and I take him home is like my fantasy and I can't wait for that day."
However, for now, Jones is just resting at the Ronald McDonald House in Seattle. She and her new baby, Noah, are tired.
The corrective surgery on Noah's spine was a scary process, but now they've conquered that challenge. But Jones still wants answers.
"My biggest concern is why no one has contacted me and asked me questions. I know that they want to be sensitive to mothers but I would rather have them contact me so they can get as much information as they can to proceed in how they're going to look into this," Jones explained.
The State Department of Health has formed a panel that is currently reaching out to the public to answer questions and to ask them.
"Looking at what kind of questions they asked the mothers during that study they didn't really come up with a good answer for you," Seattle Children's Hospital Dr. William Walker described.
In fact, they haven't asked many questions of the mothers at all. Dr. Walker is the Director of the Spina Bifida Program at Seattle Children's Hospital.
"This defect occurs very early in the pregnancy. Somewhere within about the first 2-3 weeks of the mom being pregnant, so many moms don't even know they're pregnant by the time this defect has already happened," Dr. Walker said.
On Tuesday, at a public forum in Sunnyside, health officials said they will continue to research each individual local case for at least the next year. They plan to reach out to the mothers of these babies for interviews and they hope to find some common factors that could have caused these birth defects.
It's a scary ordeal, one that Jones knows all too well. She says god and, of all things, Facebook are getting her and Noah through this situation.
"Just everyone reaching out on there and just praying and just showing their love has been so amazing," Jones told us.
While the answers are coming slowly, Jones says she's just happy Noah is finally here. He may never walk on his own and he may have started life with a battle, but love concurs all.
"Noah, he can't see this now but eventually someday when he watches this interview, that I love you, I love you, I love you so very much."
Monday, July 28 2014 5:59 PM EDT2014-07-28 21:59:04 GMT
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