Boy battles rare medical conditionPosted: Updated:
Ellensburg WA - Parents always complain that their children grow up too fast, but for a boy from Ellensburg, it's a serious medical condition.
Brenden Adams says he's like any other boy his age, but doctors say, as far as they know, he has a medical condition that's never been diagnosed before.
"I like to ride my bike, play video games."
Brenden Adams sounds like a normal boy.
And his parents say he appeared to be a normal baby.
"It's very difficult as a parent to have a doctor tell you there is something different or wrong with your child," says Debbie Ezell, Brenden's mother.
"It seemed like we were at children's hospital every other week," says Willie Adams, Brenden's father.
Brenden was measured at 19-inches when he was born. Now he's just a shade below seven feet tall. That's 14-inches taller than his father, and a lot taller than the other sixth graders at Morgan Middle School.
"I don't really want to get any taller just because it would be that much harder to get in cars and doorways," says Brenden.
Doctors couldn't explain it. Brenden was growing about eight inches a year.
He was also diagnosed with a brain tumor and a bleeding disorder.
It wasn't until age ten that they found a possible answer; a genetic defect in his twelfth chromosome.
"This is as far as I can go," says Brenden, trying to make a fist with his hand.
His are extremely large and he suffers from arthritis.
It's a struggle for him to put on socks and his size 18-quadruple-e shoes.
"Everybody knows him, so they just treat him like a normal boy," says Brenden's step-sister Sierra, who is in his sixth grade class.
His classmates may accept him for who he is, but Brenden still has trouble fitting in in other ways.
Desks at school are too small. He constantly has to duck his head under doorways.
Morgan Middle School is three stories tall, but walking up the stairs takes a toll on his knees. Brenden usually takes the elevator.
His parents are divorced, but they are now trying to make him more comfortable at home.
They are buying bigger beds for him to sleep and more comfortable furniture.
His mother, Debbie, is actually building a house right now with him in mind.
The ceilings are nine feet tall and the doorframes are eight feet so Brenden won't have to duck his head.
She is also building a single story home so he doesn't have to go up and down stairs.
If you happened to see Brenden, you might think his height makes him an ideal candidate to play sports, but he can't run and his bleeding disorder makes it too dangerous.
"I wish I could play football because it's my favorite sport," says Brenden.
But his parents say he's never considered himself to be sick, and through it all, he's been the strong one.
Doctors don't really know if Brenden's medical condition is life threatening, but there is some good news to report.
They have been able to stop Brenden's growth for about eight months through hormone therapy.
And the tumor on his brain has pretty much stayed in check.
Several weeks ago, friends and family of Brenden Adams held a big fundraiser for him to help his parents for the costs to update their home to make him more comfortable.